I know I have already posted about how excited I am about Christmas but there was something I wanted to add.
I know I am very privileged now, I have an amazing husband who loves me, two wonderful families, fantastic friends to share the festive season with and above all, I have health! I am very healthy, and so is Kevin thanks to all his hard work. But Christmas is also a time for remembering all those not with us this year but are never far from our minds....Nanny Bess, Nanny Joyce and Gina to name just a few.
It greatly upsets me that there are quite a few of my friends who are desperately ill with their Cystic Fibrosis and am so worried that this Christmas may be their last if they don't get the good news they so desperately need! It makes us all remember that Christmas is not about presents, but about spending time with those who we hold dearest, for making memories and for sparing a thought for those who know the true meaning of Christmas - love! Some of my friends wont be partying and drinking and dancing this year but will have quiet Christmases full of hope for better, healthier lungs whilst struggling to breathe. I believe we should look at these special people and realise just how privileged we all are......to not be thinking of a last Christmas!
CF is such a horrible disease but despite it, I have made some of the most amazing friends imaginable. Many I have never met but that doesn't mean they don't mean a lot to me. We talk about everything over the internet and have become really close. A true 'real' friendship does not need to exist purely face to face! Kevin warned me when we met that if I make friends with people with CF, I may be destined for grief....he didn't say it to be bitter but because he has been friends with so many people that have ultimately died and he has been heartbroken....Matt, Tracy, Simone, Roxanne, Paula are a few I hear him talk about often. As much as he warned me, some of the people I 'met' over the internet are such lovely people that I couldn't help but become friends with them and look forward to our next chat on facebook - like Kimberly Liane Kneil, Jodie Wheeler-Bennett, Kim Moult and of course, Sarah Merrett!
I love Christmas and I have a bright and happy future ahead with Kevin. I just so desperately hope that my friends get their transplant calls and better lungs so that they can enjoy future Christmases without wondering if it will be their last!
Thinking of you, my lovely friends!
Merry Christmas, with lots of love! xxxxxx
My Nanny Bess always told me to keep written accounts of everything important in my life and in turn, it would help me make sense of everything. Well, in the last few years, there have been so many important events in my life - high's and lows, despair and finding a new lease in life that I haven't had a chance to keep track. Well, now things are settling down for me...here goes.... :)
2 comments:
Hiya I have CF too. Just found your blog and I think it's really good! xx
Thanks Josie! :D Hope you're well! xxx
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